The Leila Rose Foundation is dedicated to assisting families affected by Rare Childhood Cancer.
The Leila Rose Foundation offer support and guidance to families when faced with the painful reality that little may be known about the cancer affecting their child. Faced with the possibly of no known cure, the foundation assists families to ensure that they have a complete understanding of their child’s cancer, the treatment process and available treatment options so that they feel empowered to make informed choices about their child’s health.
Assistance offered by the Leila Rose Foundation is diverse and ranges from supporting families with the practical responsibilities associated with tackling a rare disease to seeking secondary or specialist intervention in addition to researching global treatment advances for like cancers.
THE PROBLEM
There are over 300 children diagnosed with rare cancer per year
We are currently only able to support 50 children and their families a year, and need to do a lot more..
395
Total Families Supported
120
Families Currently Supported
1466240
Funds Distributed to Families
24
Amazing Volunteers
OUR MISSION
To bring support, knowledge and hope
to families of a child diagnosed with a rare childhood cancer
that are facing the painful reality that little may be known
about the cancer affecting their child
Ambassadors
Buy a Ticket in the Charity Raffle Play & Raise Much-Needed Funds for the Leila Rose Foundation!
The Leila Rose Foundation is registered with Play For Purpose, a not-for-profit, nationwide charity raffle where 50% of each ticket sold directly benefits our cause! There’s a $250k first prize pack up for grabs, four raffles a year and hundreds more prizes to be won! Tickets cost $10, with $5 from every ticket going directly to the Leila Rose Foundation. It’s a win-win, be in the running for a great prize, and support families of children with a rare cancer diagnosis.
Just head to the website link below, click on ‘Buy Tickets’ and you will be up and running!
Family News, Updates & Events
Ava’s Story
Over $60,000 Raised from the Leila Rose ’24 Christmas Party
Finn’s Story
Christine’s Story
Saxon’s Story
Dave Hughes Joins as Leila Rose Foundation Ambassador!
Fundraising Efficiency
- Direct to families
- Fundraising Costs
Thanks to the wonderful support of our volunteers, 95% of your donations go direct to support the families affected by rare childhood cancers.
A special thank you to the Uebergang foundation and
Jones foundation who fund our Family Support Officer, allowing the Leila Rose Foundation to minimise administrative costs and support those families in need.
- Family Support Officer Funded
Partners
