Who we are
The Leila Rose Foundation is dedicated to assisting families affected by Rare Childhood Cancer.
The Leila Rose Foundation offer support and guidance to families when faced with the painful reality that little may be known about the cancer affecting their child. With possibly no known cure available, the foundation assists families to ensure that they have a complete understanding of their child’s cancer, the treatment process and available treatment options so that they feel empowered to make informed choices about their child’s health.
Assistance offered by the Leila Rose Foundation is diverse and ranges from supporting families with the practical responsibilities associated with tackling a rare disease to seeking secondary or specialist intervention in addition to researching global treatment advances for like cancers.
In Australia, approximately 750 children will be diagnosed with cancer this year1
It is estimated that up to 370 of these children will have a rare cancer
Up to 40 families will be told that their child may not survive2
1. A summary of Childhood Cancer Statistics in Australia, 1983-2014 , Cancer Council Queensland, https://cancerqld.blob.core.windows.net/site/content/uploads/2017/12/A-summary-of-childhood-cancer-in-Australia-1983-2014.pdf (Accessed 22-5-2018)
2. Cancer Australia: Children’s Cancers Statistics, Australian Government https://childrenscancer.canceraustralia.gov.au/about-childrens-cancer/statistics (Accessed 22-5-2018)
HOW COULD YOU HELP?
Total Families Supported
Families Currently Supported
Funds Distributed to Families
News & Events
Host a Fundraiser
Just Giving is our online partner who makes fundraising a breeze. Just Giving also processes our online donations. At www.justgiving.com.au you can quickly and easily set up your own account, register your fundraiser and have people donate to your cause safely, easily and with minimal fuss to all parties involved. Best of all, they handle the administration side of things regarding finance including receipts etc, leaving you to concentrate on the most important part, your event!
- Direct to families
- Fundraising Costs
Thanks to the wonderful support of our volunteers, 95% of your donations go direct to support the the families affected by rare childhood cancers.
A special thank you to the Uebergang foundation and
Jones foundation who fund our Family Support Officer, allowing the Leila Rose Foundation to minimise administrative costs and support those families in need.
- Family Support Officer Funded