The Leila Rose Foundation offer support and guidance to families when faced with the painful reality that little may be known about the cancer affecting their child. With possibly no known cure available, the foundation assists families to ensure that they have a complete understanding of their child’s cancer, the treatment process and available treatment options so that they feel empowered to make informed choices about their child’s health.

Assistance offered by the Leila Rose Foundation is diverse and ranges from supporting families with the practical responsibilities associated with tackling a rare disease to seeking secondary or specialist intervention in addition to researching global treatment advances for like cancers.

In Australia, approximately 750 children will be diagnosed with cancer this year¹

It is estimated that up to 370 of these children will have a rare cancer

Up to 40 families will be told that their child may not survive²

1.  A summary of Childhood Cancer Statistics in Australia, 1983-2014 , Cancer Council Queensland, https://cancerqld.blob.core.windows.net/site/content/uploads/2017/12/A-summary-of-childhood-cancer-in-Australia-1983-2014.pdf (Accessed 22-5-2018)
2. Cancer Australia: Children’s Cancers Statistics, Australian Government https://childrenscancer.canceraustralia.gov.au/about-childrens-cancer/statistics (Accessed 22-5-2018)