The Leila Rose Foundation offer support and guidance to families when faced with the painful reality that little may be known about the cancer affecting their child. Faced with the possibly of no known cure, the foundation assists families to ensure that they have a complete understanding of their child’s cancer, the treatment process and available treatment options so that they feel empowered to make informed choices about their child’s health.

Assistance offered by the Leila Rose Foundation is diverse and ranges from supporting families with the practical responsibilities associated with tackling a rare disease to seeking secondary or specialist intervention in addition to researching global treatment advances for like cancers.

There are approximately 450 children diagnosed with rare cancer per year

We are currently only able to support 50 children and their families a year, and need to do a lot more..

1.  A summary of Childhood Cancer Statistics in Australia, 1983-2014 , Cancer Council Queensland, https://cancerqld.blob.core.windows.net/site/content/uploads/2017/12/A-summary-of-childhood-cancer-in-Australia-1983-2014.pdf (Accessed 22-5-2018)
2. Cancer Australia: Children’s Cancers Statistics, Australian Government https://childrenscancer.canceraustralia.gov.au/about-childrens-cancer/statistics (Accessed 22-5-2018)